What are the responsibilities and job description for the Director of Development position at Amyloidosis Research Consortium (ARC)?
Position: The Director of Development for Amyloidosis Research Consortium (www.arci.org), will lead and drive strategy and execution for major gifts and philanthropy, while guiding and supporting the broader development team for this high-growth, high-impact organization.
Organization: Amyloidosis Research Consortium (ARC), a 501(c3) nonprofit organization, is dedicated to advancing research, treatment, and awareness of amyloidosis, aiming to improve patient outcomes and quality of life. Founded in 2015, ARC now has a staff of 14 professionals, and a $4.5M budget with a Development Team revenue goal for 2026 of $1M.
Purpose: Amyloidosis is a group of diseases where abnormal proteins build up in organs, causing progressive damage. In the U.S., approximately 3,800 new AL amyloidosis cases are diagnosed annually. However, ATTR amyloidosis affects far more people: over 100,000 Americans have the age-related form, and 50,000 people worldwide have the inherited form. Studies show that roughly 13% of older heart failure patients actually have undiagnosed ATTR amyloidosis, meaning the true patient population is even larger. As awareness and diagnosis improve, the community continues to grow.
Reports to: Chief Executive Officer (CEO).
Management: Supervises the Development Operations Manager, whose responsibilities include CRM/Salesforce and data management, acknowledgements and receipts, mid-year and annual direct mail and electronic appeals, foundation and grant tracking, and donor prospecting, research, and reporting to advance new constituents with major donor potential coming into the organization.
Full-time and fully remote position. The organization is based in Newton, MA, but the team is fully remote.
Travel: 25%-35% to meet with donors, attend staff gatherings, and related conferences and events.
$125,000 – $135,000 salary range, commensurate with experience. We offer a competitive benefits package including generous paid time off, comprehensive health insurance, life & disability coverage, 401(k) with employer match, and more.
Applications are reviewed on a rolling basis. To apply, please have your resume and a personalized cover letter ready, and apply through our careers page at:
🔗 https://ats.rippling.com/arc/jobs
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Salary : $125,000 - $135,000